All tagged Infant loss
Happy Mother’s Day to all of you, but especially those of us with empty arms. xo
Do you know what trisomy 18 is?
I thought I did when I was a med student and resident. I thought I did until I found out that my daughter had trisomy 18.
What are the things I carry? It’s an amalgam of treasured childhood moments, intimidating med school and residency moments, and an awful lot of both regrets and happiness that involve each of my kids, including, of course, my Macy though she passed away.
If I posted pictures of me compared to ten years ago, I may not look younger or more fit, but I am just as content.
Content is a mild word, but only because today is the day that my middle child would be turning ten years old.
I thought back to my first year with Little Lion, my rainbow baby. Do I remember any of it?
Mostly no. I just remember sleepless nights and breastfeeding and holding her close. Plus the JOY JOY JOY that our rainbow baby brought into our lives. Always bittersweet.
I likely wrote about this last year too, but this is the time of year when I freeze up in the aisles at Target. Why?
Because I feel at a loss at whether or not to buy a(nother) mini-Christmas tree for Macy.
Dr. Bookworm talks about PEACEFUL mornings as a mother, and also about Special Delivery and the OC Walk to Remember.
By definition, PTSD doesn't really go away....it's just that not everyone understands that I have PTSD. I didn't know it myself until I heard my therapist say it off-hand. Like it was a given. And that it was okay.
Just like I didn't realize that I had 'depression' until she said it. I thought I was grieving. But I also wasn't functioning as well. So "acute depression" it is. It's interesting that we tend to stay away from 'labels' and 'diagnoses' even as medical professionals. But, years later, I can say that I had depression. And that it was okay. I'm okay.
"In caring for Molly, insurance only went so far-her friends and family helped make up the difference by raising money and making personal donations. The Molly Bear Foundation, named in loving memory of Molly Elizabeth, is a community devoted to taking care of one another. The goal of the foundation is to pay it forward by providing supplemental financial assistance to families raising children with Trisomy 18." ~ Erin Brown
"The Ruthie Lou Foundation was inspired by the love, care, and support that my daughter's team of health professionals showed my family. We were guided through our time with Ruthie Lou and it has made all the difference as we navigate our life without her. In creating this non-profit, I wanted to offer the same compassion to other families experiencing the loss of their beloved baby." ~Amie Lands
This quote is on one of the cards in our Macy calendar this month. I’ve been taking the quotes to heart this year, trying to find meaning in each one, just as I meant for my little family to do when we were making them together last year.
January is when I start to feel icky. And by 'icky', I mean restless and crawling out of my skin. It has only hit me in small bursts this year, but in the early morning hours of this Saturday morning, I'm feeling it. My family is asleep. Usually Mr. Bookworm is up writing by now. I'm wide awake because I woke before my alarm.
Featured Fridays: I'm featuring a non-profit organization every Friday for the nine Fridays leading up to what would have been Macy's ninth birthday.
Now I Lay Me Down to Sleep is an organization that provides volunteer photographers to document the life of infants who are born still or who live for a only short time.
Featured Fridays: I'm featuring a non-profit organization every Friday for the nine Fridays leading up to what would have been Macy's ninth birthday.
I didn't know the logistics of what it would be like to give birth to a baby who may or may not survive the birthing process. Enter the St. Joseph's Perinatal Comfort Care Program.